Rare Disease Clinical Protocol Curator

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Job ResearchPrimary Location TN-Nashville-2525 West End AveOrganization VICTR 104242Shift First Shift


Rare Disease Clinical Protocol Curator – VICTR

JOB SUMMARY

RareCAP is an online program for the creation and curation of protocols to manage care for patients with rare diseases. The platform is designed for both specific author input and clinician/professional community input. In your pivotal role as Curator, you will exercise editorial control of the protocols housed in RareCAP and solicit authors to create and own new ones. The Curator initially will also oversee the clinician community engagement and comments on these protocols and monitor for suggestions that should be incorporated and censure comments/behaviors not conducive to constructive discussions. The Curator will have the authority to approve suggestions from potential authors for new rare disease content and ensure that existing content is regularly updated. The Curator will be the point of contact with the platform owner, the clinician community, and disease owners and collaborators to handle problems and suggestions to improve the program.

BASIC QUALIFICATIONS

Master’s degree with 5 years of experience or PhD and/or MD with 3 years of experience (required).

DESIRED SKILLS

  • Strong verbal and written technical communication skills
  • Good public speaker
  • Database experience or interaction with informatics team
  • People management skills necessary
  • Preferred candidate will have medical domain knowledge (e.g., physician, nurse) with rare diseases

About the Department:

View how Vanderbilt Health employees celebrate the difference they make every day:

Discover Vanderbilt University Medical Center:

Located in Nashville, Tennessee, and operating at a global crossroads of teaching, discovery and patient care, VUMC is a community of individuals who come to work each day with the simple aim of changing the world. It is a place where your expertise will be valued, your knowledge expanded and your abilities challenged. It is a place where your diversity — of culture, thinking, learning and leading — is sought and celebrated. It is a place where employees know they are part of something that is bigger than themselves, take exceptional pride in their work and never settle for what was good enough yesterday. Vanderbilt’s mission is to advance health and wellness through preeminent programs in patient care, education, and research.

VUMC Recent Accomplishments

Because we are committed to providing the best in patient care, education and research, we are proud of our recent accomplishments:

  • US News & World Report: #1 Adult Hospital in Tennessee and metropolitan Nashville, named to the Best Hospitals Honor Roll of the top 20 adult hospitals, 10 nationally ranked adult specialty programs, with 3 specialties rated in the top 10 nationally, Monroe Carell Jr. Children’s Hospital at Vanderbilt named as one of the Best Children’s Hospital in the nation, with 10 out of 10 pediatric specialties nationally ranked.
  • Healthcare’s Most Wired: Among the nation’s 100 “most-wired” hospitals and health systems for its efforts in innovative medical technology.
  • Becker’s Hospital Review: named as one of the “100 Great Hospitals in America”, in the roster of 100 Hospitals and Health Systems with Great Oncology Programs and to its list of the 100 Hospitals with Great Heart Programs.
  • The Leapfrog Group: One of only 10 children’s hospitals in the to be named at Leapfrog Top Hospital.
  • American Association for the Advancement of Science: The School of Medicine has 112 elected fellows
  • Magnet Recognition Program: Received our third consecutive Magnet designations.
  • National Academy of Medicine: 22 members, elected by their peers in recognition of outstanding achievement
  • Human Rights Campaign Healthcare Equality Index: 6th year in a row that Vanderbilt University Medical Center was a Leader in LGBTQ Healthcare Equality.

KEY RESPONSIBILIES

  • Prepares and/or edits written technical reports, protocols, peer-reviewed manuscripts, abstracts, and presentations.
  • Prepares and/or edits study protocols, statistical analysis or other project implementation plans in collaboration with a research team or other collaborators to address research questions and objectives.
  • Identifies and collects appropriate data, including from literature, databases, interviews and/or surveys using scientifically valid methods.
  • Provides support for a broad portfolio of sophisticated healthcare research projects in a project team structure. May supervise research staff.
  • May conduct remote web-based interviews and moderates focus groups with a spectrum of healthcare stakeholders, including patients, caregivers, healthcare professionals, academic experts, and policymakers.
  • Synthesizes, interprets, and communicates complex quantitative and qualitative results to internal and external audiences.
  • Manages additional team members as the program grows.
  • Serves as a technical product informant for the RareCAP technical platform.

TECHNICAL CAPABILITIES

  • Technical proficiency with common business software (e.g., Word, Excel, PowerPoint)
  • Familiarity with common biomedical research information retrieval tools (e.g., PubMed, web of science)

EVIDENCE SYNTHESIS (ADVANCED)

  • Conduct comprehensive literature searches, identify appropriate information, and synthesize evidence from biomedical literature and other resources to support projects and teams. Support leadership by consulting on a range of research, grant, patient care, and business activity related information requests. Triage evidence requests based on expertise, providing formative feedback on approach, deliverables, and timelines. Synthesize relevant evidence into formal concept documents and presentations. Develop and refine hypotheses related to novel findings.

COMMUNICATION OF RESULTS (ADVANCED)

  • Analyze, distill, and disseminate project results in ways that are successful in spreading findings and approaches for the purpose of benefiting institutions, researchers, trainees, and patients beyond VUMC. Disseminate evidence results with teams. Collaborate on manuscripts to disseminate findings and opinions resulting from a body of work. Oversee and edit manuscripts to disseminate key programs and projects more broadly via peer-reviewed literature. Actively contribute to discussions with collaborators regarding findings and ideas for follow-up work.

PROJECT MANAGEMENT (ADVANCED)

  • Guide evidence-based activities in identifying potential collaborators. Communicate with internal and external study collaborators. Establish project timelines and dependencies and track internal and external team activities. Regularly monitor the literature, team interests and findings, and other evidence sources and refine course as needed.

QUALITY ASSURANCE (ADVANCED)

  • Design and develop audit measures based on general SOPs and prepare checklists for inspections and compliance monitoring.
  • Physical Requirements/Strengths needed & Physical Demands:
    • Light Work category requiring exertion up to 20 lbs. of force occasionally and uses negligible amounts of force to move objects.

    Movement

    • Occasional: Sitting: Remaining in seated position
    • Occasional: Standing: Remaining on one’s feet without moving.
    • Occasional: Walking: Moving about on foot.
    • Occasional: Lifting under 35 lbs: Raising and lowering objects under 35 lbs from one level to another
    • Occasional: Push/Pull: Exerting force to move objects away from or toward.
    • Occasional: Bending/Stooping: Trunk bending downward and forward by bending spine at waist requiring full use of lower extremities and back muscles
    • Occasional: Reaching below shoulders: Extending arms in any direction below shoulders.
    • Occasional: Handling: Seizing, holding, grasping, turning or otherwise working with hand or hands.

    Sensory

    • Occasional: Vision: Clarity of near vision at 20 inches or less and far vision at 20 feet or more with depth perception, peripheral vision, color vision.
    • Frequent: Noise: May include exposure to occupational noise levels which equal or exceed an 8-hr time-weighted average of 85 decibels, requiring enrollment in VUMC’s Hearing Conservation Program which includes training, use of hearing protection, and periodic audiometry.
    • Continuous: Communication: Expressing or exchanging written/verbal/electronic information.

INDTB

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